Cerveteri – A kite for spinal muscular astrophy research’spinal muscular astrophy
Saturday, Oct. 4 and Sunday, Oct. 5 traditional appointment with solidarity “returns throughout Italy;A kite for a child“. The kite was chosen by the parents of the'SMA Family Association As a symbol for Spinal Muscular Atrophy research. Also in Cerveteri, in Aldo Moro Square, volunteers will set up a banquet where they can purchase a beautiful kite and offer their support for research.
"With the purchase of one of these kites – stated Francesca Cennerilli, Councillor for Social Policies of the Municipality of Cerveteri – We will support fundraising to finance scientific research on SMA, a serious disease for which a cure has not yet been found. That is why I invite the entire Citizenship to join the campaign and make a small contribution to research and, in this way, return a little hope to the families who struggle every day.".
Also Kaspar Capparoni, well-known TV actor and citizen of Cereta, joined the’initiative. On Sunday, from 10 a.m.00 to 12 p.m.00, the’actor will be along with volunteers to support the fundraiser.
L’Spinal Muscular Atrophy is a degenerative neuromuscular disease Of nerve cells in the spinal cord that affects children. SMA limits or even prevents these children from doing activities such as walking, crawling, neck and head control, and even swallowing.
The SMA Families Association is a group of parents of children with SMA who fight for better care for children and better information about SMA. In addition, the association is dedicated to training families and health care workers and funding scientific research.
For EVERY KITE A minimum contribution of 7 euro.